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Multiple Sclerosis Surveillance Registry: Using Big Data and Health Informatics to Heal and Cure MS

4/19/2017

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This article later appeared in FedGov.News: http://bit.ly/2osldI1
​In 2015, all of us at Geek Sources, a Women-Owned Small Business (WOSB) specializing in information technology (IT), were honored to be selected to support the researchers and medical practitioners at the Department of Veteran Affairs (VA) dedicated to solving the puzzle of Multiple Sclerosis (MS). We were awarded a project with the VA and the Veterans Health Administration (VHA) to enhance the Multiple Sclerosis Surveillance Registry (MSSR) system to add critical new data elements for significant analytics. With a longstanding, successful history with the VA, we have also worked on the Veterans Benefits Management System (VBMS)-Ratings, VBMS-Awards, Eliminating Veteran Homelessness (EVH) system, Loan Guarantee (LGY) system, Memorial Enterprise Letters (MEL) system, and Research Administrative Management System (RAMS). In addition, our team of health IT (HIT) experts bring a wealth of VA health registry experience, including, but not limited to, the Traumatic Brain Injury (TBI) registry, the Embedded Fragments Registry (EFR), the Breast Care Registry (BCR), the Oncology (ONC) registry, the VA Eye Injury Data Store (EIDS), and the Clinical Case Registry (CCR). The enhancements we made to the MSSR are a prime example of our Geek expertise in big data and health informatics.
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​​MSSR is a web-based registry application that provides clinical data surveillance tracking and longitudinal patient data analysis and reporting for the entire MS population within the VHA. In response to Congressional legislation, the system tracks and monitors the VA’s MS patient cohort, demographics, diagnoses, symptoms, and treatments over a span of time and geography. MSSR provides extensive health data analytics for the Multiple Sclerosis Centers of Excellence (MSCoE) directors, in addition to providing them with the MS Assessment Tool (MSAT) to assist MS specialists with the difficulty of diagnosis. The MSCoE in the East and West have endeavored to actively study and examine MS, publishing and sharing their findings for healthcare academia and other communities.

One article in the Journal of Rehabilitation Research & Development reveals that one of the problems that MS patients and physicians have encountered over the years is that “there is no gold standard MS cohort/registry in the United States nor has there been a comparison of the MS databases that do exist.” What this means is that in order “to further our understanding of risk factors for the development and progression of MS as well as to conduct comparative effectiveness studies, we need a large, longitudinal, and diverse cohort of MS patients.”
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The VA’s MSSR system meets those needs. With over 30,000 Veterans who suffer from MS, 1500 new MS cases annually, and 125 new cases every month, MSSR provides a vast demographic that ranges in age and location, and “findings suggest that MSSR is generally representative of the larger MS population in the United States. The detailed healthcare utilization and cost data maintained by the VHA combined with data from MSSR provides a unique and demographically diverse MS cohort for future study.”

​For our part, Geek Sources was tasked with big data needs for inpatient/outpatient utilization, prosthetics, vital signs, vital statuses, death dates and causes, non-VA/fee-based medications, and Decision Support System (DSS) data - specifically laboratory, radiographics, pharmacy, and costs. Considering the VA operates “the largest integrated health care system in the United States” (per the VA’s website), this was no easy feat. Currently, the VHA includes “168 VA Medical Centers and 1,053 outpatient sites…serving more than 8.9 million Veterans each year.” ​To persist the Veteran’s heath record, the VA leverages the Veterans Information Systems and Technology Architecture (VistA), implemented in MUMPS, as its Electronic Health Record (EHR). To complicate matters in terms of big data, VistA has more than 130 installations deployed at different VA facilities across the nation. Hence, if a Veteran visits multiple facilities, it is possible that different portions of his/her health record exists in multiple instances of VistA. The VA’s Corporate Data Warehouse (CDW), an Oracle database (DB), contains exports from all the VistA instances. Consequently, these original data sources feeding the CDW are primarily decentralized and customized instances of VistA, which provide a disparate, non-centralized source of clinical MS data that makes reporting and analytics difficult. The CDW addresses some of these issues but has data quality issues and holes with respect to MS.
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Geek Sources began the MSSR enhancements project by reviewing and confirming existing requirements, development artifacts, and testing artifacts, including user stories and acceptance criteria.
​We then held Joint Application Development (JAD) sessions with Subject Matter Experts (SMEs) and data source SMEs to verify the current data workflows from a business process perspective by performing the initial analysis of the state of the data sources targeted for the enhancements. The SMEs included clinicians, statisticians, and epidemiologists to review existing data models and schema within the CDW to identify potential tables and fields as sources for the data enhancements.

​We also analyzed existing interfaces to CDW, its Extract Transform and Load (ETL) code, the availability of data, the expected accuracy of the data, and the timing of data transfers and their frequency. Once the fields were confirmed, we reviewed sample data from CDW to determine the quality of the data prior to targeting the information for export. We then enhanced and developed ETLs in C#/SQL within Visual Studio to export and import the data using SQL Server Information Services (SSIS) into MSSR’s Microsoft (MS) SQL Server DB from CDW. In addition, we enhanced MSAT within Computerized Patient Record Systems (CPRS), the User Interface (UI) of VistA. This included enhancing the messaging to VistA. MSAT sends a Text Integration Utility (TIU) note with health factors through a VistA Integration Adapter (VIA) message, routed through the VistA Integration Engine (VIE), using HL7 messaging to VistA.
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Geek Sources also developed new analytic reports using chart controls within .NET framework for the enhancements leveraged by the researchers. To ensure a quality system, we enhanced and developed master test plans, test cases, and scripts to verify the delivered user stories, epics, and traced requirements – all maintained within the Requirements Traceability Matrix (RTM). Geek Sources maintained requirements as well as code versioning and configuration management within the IBM Rational Jazz Toolset Rational Team Concert (RTC), Rational Requirements Composer (RRC), and Rational Quality Manager (RQM). Our enhancements were tested and passed for cyber security leveraging HP Fortify Secure, as well as ADA 508 compliance using Deque WorldSpace and FireEyes. We successfully executed the project, adhering to the Project Management Body of Knowledge (PMBOK) and quality standards, including the VA’s Project Management Accountability System (PMAS) using MS Projects and Primavera tools.
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​Our MSSR Enhancements Project Manager, Cathryn Patterson, explains some of the hurdles overcome during the project: “The enhancement of MSSR was a flagship project for Big Data management at the VA. No one before us had been granted more access to the different health data sets as requested by the Business Owner. CDW-Raw is where data from multiple Veterans Integrated Service Networks (VISNs) are first loaded from across the nation before being mined, cleaned, and loaded into CDW-Prod. It is where a lot of the DSS data resides. We had to analyze huge datasets, and normalize them to display the new data in a meaningful way. ​Our data architect and Extract Transform Load (ETL) developer did all of this while working with the VA doctors and researchers. I have never been prouder of our Geeks – we overcame so many obstacles to enhance this powerful healthcare system that helps provide quality care to our Veterans suffering from MS.”

​For the first time ever, MS clinicians now have more meaningful data, which allows for more accurate diagnoses, treatments, and epidemiological studies. In so doing, the lives of all MS-afflicted Veterans have been made a little bit easier in the process, and Geek Sources has successfully contributed to advancing MS research – bringing us a step closer to finding a cure. Sheetal Nilak, our data architect on the project, reveals that “the customers were happy with the data that we pulled for them from CDW. This [data] will help them make better/faster decisions, evaluate treatment plans, and, thus, help Veterans.” By collecting, organizing, and delivering data from multiple sources in a single registry, MSSR makes it possible for the VHA and its employees to use this data to better diagnose and treat those Veterans that have been affected by MS, hopefully making their lives a little easier in the process.
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According to the National Multiple Sclerosis Society, MS is “an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body.” Part of the difficulty with diagnosing and treating MS is that its symptoms vary from fatigue and bladder problems, to dizziness and difficulty walking, to more psychological issues, like depression and lower cognitive functioning. ​

Unlike other diseases, MS is incredibly difficult to diagnose, with it being mistaken for Clinically Isolated Syndrome (CIS) or Neuromyelitis Optica, also known as Devic’s Disease, and vice versa. Unfortunately, this means that the patient must often take various drugs, try different rehabilitation programs, and see multiple specialists – relaying their history with the disease each time they encounter a new doctor or hospital. For anyone, let alone our Veterans, MS is a debilitating disease that makes everyday life activities, that we all take for granted, massively challenging, with sufferers taking various disease modification treatments (DMTs) within different rehabilitation programs under the care of several MS specialists.
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With little private sector funding, Americans suffering from MS rely on the data integrity and longitudinal analysis of the VA’s MSSR system. Although the MSSR focuses on our Veteran population, the information it gathers and the data it creates on MS helps all Americans affected by the disease.

With our work on the Multiple Sclerosis Surveillance Registry, Geek Sources has been a pivotal force behind the furthering of MS research and, with our team of dedicated IT professionals, we continue to serve America’s Veterans by helping provide quality IT healthcare systems.
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Getting a High-Heeled Leg Up: How the Federal Government Can Encourage Women-Owned Businesses

3/3/2017

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Wonder Woman has often been referenced as a champion for female equality, especially in the workforce.
In our last blog, we explored ways to get young women more interested in STEM by increasing the representation of women in STEM-related careers in popular culture. While this is a great first step, it isn’t enough. We also need our government to help encourage the hiring and promoting of women professionals and Women-Owned Businesses (WOBs), especially Women-Owned Small Businesses (WOSBs). Currently, the federal government has programs in place to help WOSBs; however, they rarely, if ever, meet their goals for contracting WOSBs and there are virtually no repercussions for federal agencies who do not meet these goals.
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On December 31, 2015, the U.S. Department of Commerce created a report for the WOSB Program of the Small Business Administration titled “Utilization of Women-Owned Businesses in Federal Prime Contracting.” The report, over 60 pages in length, details how WOBs and WOSBs are not chosen for government contracts at the same rate as similar non-women-owned businesses. No matter what field the contract may be in, STEM-related or otherwise, WOBs and WOSBs face an uphill battle. In fact, “the odds of winning a contract for Woman-Owned Businesses are estimated to be roughly 21 percent lower relative to the odds of winning contracts by otherwise similar firms that were not identified as WOBs.”

The report goes on to say that “WOBs have statistically significant lower odds of winning contracts” and that “the industries in which WOBs are less likely to win contracts account for about 85 percent of contracts and of dollars obligated,” meaning that WOBs and WOSBs are missing out on 85% of the federal government’s contracts and missing out on a significant amount of money. How can the U.S. government help women, WOBs, and WOSBs overcome these odds? Let’s take a look at a few possible ways to close this gap and give women and their businesses a fighting chance.


​​Make WOSBs a Bigger Priority for Set-Asides:
​The U.S. General Services Administration explains that set-asides are used so that “the federal government establishes formal goals to ensure small businesses get their fair share of work in the federal market.” To accomplish this, “each federal agency must set an annual goal for participation by different types of small businesses.” The initial suggested percent for WOSBs is only 5%, which seems like it should be no big deal; however, only once in the more than 15 years since the 5% set-aside for WOSBs was suggested has that number been reached (during the 2015 fiscal year with 5.06%). In fact, it took until 2013 for federal agencies to reach 4%. The current fiscal year has only reached 4.28%.
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​Create North American Industry Classification System (NAICS) Codes for Economically Disadvantaged Women-Owned Small Businesses (EDWOSBs) in Technology:
According to the United States Census Bureau, NAICS codes are “the standard used by Federal statistical agencies in classifying business establishments for the purpose of collecting, analyzing, and publishing statistical data related to the U.S. business economy.” NAICS may be a classification system, but it also helps small businesses have a better chance of being considered for big time jobs. Contracts will specify that the contract has been set aside for companies that are classified with certain codes, including WOBs, WOSBs, and EDWOSBs. The problem is that there are no NAICS codes for EDWOSBs in the technology category, meaning EDWOSBs don’t receive any more special consideration than WOSBs, even though they face even more hardships by being economically disadvantaged in addition to being women-owned.
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Require a Minimum Percentage for the Female Workforce:
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Geek Sources is a WOSB whose workforce is 64% women and we are incredibly proud of that fact. Unfortunately, as a women-majority IT company, we are basically an unheard-of anomaly. Most companies don’t have a minimum threshold for hiring females, or if they do, it’s minimal. One group that does have a great track record of going above and beyond their required hiring amount for a specific demographic is Veteran-Owned Small Businesses (VOSBs). VOSBs go above and beyond their imposed requirements by employing a higher-than-average percentage of Veterans. However, VOSBs have an advantage because a lot of government contracts in recent years have required that the winning contractor have a minimum percentage of employed Veterans in order to apply for the project, encouraging contractors to team up with VOSBs.
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​Deniz Franck, our CEO at Geek Sources, states that “one way we could really see change is for the government to just nudge more business towards WOSBs that specialize in IT/Engineering.” If the government were to have the same or at least similar requirements for employing women as they do for employing Veterans, chances are we would see the number of women employed in IT rise. Franck takes this idea a step further, daring the government and the IT field to step up to the plate: “If they want to add a requirement that the workforce is 50% women, then we won't have any problem matching it.”

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​​If we were to give more WOBs, WOSBs, and EDWOSBs the tools they need to compete for large and small contracts, we would see a rise in both the success of these businesses and the number of women in the workforce, especially in IT and other STEM fields. If women and young girls see that WOBs working in technology fields are getting the resources, recognition, and income they need and deserve, they’ll be more likely to enter the technology workforce themselves.

In a 2016 article from The Washington Post, it states that “a more targeted focus on [females] could triple the number of women working in computing, from 1.2 million today to 3.9 million by 2025.” This would increase their share of jobs in these fields by over 10% in less than 10 years. Technology growth isn’t going anywhere but up and the jobs it creates are only going to increase. ​Already, “employers simply cannot fill [computing] positions that are becoming increasingly critical to their businesses.” If we want the U.S. to contribute to and keep up with expanding technology fields, we have to encourage more women and WOBs and give them the tools they need to succeed. Put bluntly, “U.S. business can’t meet the demands of our digital economy if we do not unlock our pool of female talent.” It would be much easier to unlock this pool of talent if our government and federal agencies provided the necessary keys to do so.
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Memorial Enterprise Letters: Helping the VA Help Our Vets

12/9/2016

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This article later appeared in FedGov.News: http://bit.ly/2kTGYxI
Here at Geek Sources, we are firm believers in helping our community and helping those who have served our community. Currently, we’re working on a project for the U.S. Department of Veterans Affairs (VA). We have worked on several projects with the VA over the years and are excited that we get to continue our partnership. Part of what we love about working with the VA is the opportunity to work with an organization that truly cares about the people it serves: America’s Veterans. These soldiers have done so much for us and we appreciate the opportunity to help them and those that serve them.
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Specifically, the application we’re currently working on serves the VA by helping generate letters sent from the VA to Veterans’ families. Letters to military families from the U.S. government have been around since the Civil War, with most letter-notification correspondence becoming regular practice during World War II. If you’ve ever seen Saving Private Ryan, you’ve seen one of the VA’s most important letter-generation services: Death notices. In the following clip, you can see an office full of women typing each individual letter.
These days, the VA is trying to streamline letter generation so that letters can be created, sent, and received in a more timely and efficient manner. The application we’re developing is called Memorial Enterprise Letters (MEL) and it integrates with the VA’s current applications, Burial Operations Support System (BOSS) and Automated Monument Application System (AMAS). When a Veteran passes away, their family must submit all requests concerning their loved one and their loved one’s memorial to the VA. When the VA responds to these requests, they do so using Resolution Letters. Our current project is to take the VA Resolution Letters application that already exists and improve it, specifically focusing on how to minimize the need for application users to manually input data into the letters that the application can generate on its own. Anita Dixon, a Business Analyst on the project, explains that, in its simplest form, “the purpose of MEL is to generate resolution letters based on applications received from families of Veterans that have passed away.” These letters allow the VA to communicate with the families of deceased Veterans quickly and respectfully.

While the MEL application’s ultimate goal is to generate these letters, the MEL application also has some extra features to help the users outside of the actual generation of letters. Dixon explains that “the MEL application has several reports that can be used by employees and management to monitor and share progress on the work being performed.” These reports allow users to monitor their progress and it allows administrators and upper management users to see how many letters are being generated and by whom. These reports allow the users to see what they’ve done and what needs improvement. Dixon believes that this opportunity for improvement should work across the application: “I am hoping that the MEL application will make the user’s job easier, with less opportunities for errors, and give them a pleasant experience doing their unpleasant work.”

​Unfortunately, the VA often has to do unpleasant work. Helping America’s Veterans and the families of deceased Veterans is a hard job that can be full of heartbreak. Keeping these Veterans and their families in mind is a necessity in a project like this. Dixon echoes this, stating that while she hopes the success of this project will cause the VA “to see the need to use a letter generation application” on a larger scale, ultimately she hopes that “the families of the deceased Veterans get better service.” And we’re working to do just that. As the project enters its final stages, we eagerly wait for the opportunity to see the application in action, knowing that it will affect not just the users at the VA, but the families of our country’s deceased Veterans.
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